PedsQL™ sickle cell disease module: Feasibility, reliability, and validity
نویسندگان
چکیده
منابع مشابه
PedsQL eosinophilic esophagitis module: feasibility, reliability, and validity.
OBJECTIVE Eosinophilic esophagitis (EoE) is a chronic esophageal inflammatory condition with a paucity of information on health-related quality of life (HRQOL). The objective of the study was to report on the measurement properties of the PedsQL EoE Module. METHODS The PedsQL EoE Module was completed in a multisite study by 196 pediatric patients with EoE and 262 parents of patients with EoE....
متن کاملDetermining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module
BACKGROUND Detecting change in health status over time and ascertaining meaningful changes are critical elements when using health-related quality of life (HRQL) instruments to measure patient-centered outcomes. The PedsQL™ Sickle Cell Disease module, a disease specific HRQL instrument, has previously been shown to be valid and reliable. Our objectives were to determine the longitudinal validit...
متن کاملA study of the development of the Korean version of PedsQLTM 3.0 cerebral palsy module and reliability and validity
[Purpose] The purpose of this study was to develop the Korean version of the PedsQL(TM) 3.0 Cerebral Palsy Module to evaluate the health-related quality of life of children with cerebral palsy and to test the reliability and validity. [Subjects and Methods] The study included 108 caregivers of children with cerebral palsy aged 2 to 4 years and 72 caregivers of children aged 5 to 7 years, who vi...
متن کاملReliability and validity of a self-efficacy instrument specific to sickle cell disease.
The psychometric properties of a new, 9-item scale measuring disease-specific perceptions of self-efficacy were investigated in a community-based sample of adults (N = 83) with sickle cell disease (SCD). The Sickle Cell Self-Efficacy Scale (SCSES) was comprised of nine questions relating to participants' perceptions of their ability to function on a day-to-day basis and to manage SCD symptomato...
متن کاملPediatric health-related quality of life: Feasibility, reliability and validity of the PedsQL transplant module.
The measurement properties of the newly developed Pediatric Quality of Life Inventory (PedsQL) 3.0 Transplant Module in pediatric solid organ transplant recipients were evaluated. Participants included pediatric recipients of liver, kidney, heart and small bowel transplantation who were cared for at seven medical centers across the United States and their parents. Three hundred and thirty-eight...
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ژورنال
عنوان ژورنال: Pediatric Blood & Cancer
سال: 2013
ISSN: 1545-5009
DOI: 10.1002/pbc.24491